Dana Bizon

Isla's Story

Isla was born July 26th, three weeks early, but happy and healthy. During the standard newborn screening, her tests came back with an elevated risk for CF. Six weeks later, a sweat test confirmed Isla does in fact have CF. She immediately got on enzymes to help her digest food and gain weight. 

All of this caught Bob and I by surprise. We had no idea that we were carriers, nor did we know what a CF diagnosis would mean for our beautiful daughter. We have a wonderful CF team at Boston Children's who have been helping us navigate this journey and together, Isla is going to have the best life we can give her.

In the past 7 months, Isla has been making new friends at daycare, she's gaining weight, and growing up so fast. She constantly has a smile on her face and giggle like crazy. When she's not giggling, she's rolling on her belly and playing with her toys. Before we know it she's going to be crawling!

Information of CF

There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.

Bob, Isla and I thank you for all your support.