Sarah Baronas

Hello All,

On Sunday, May 19th, I will be walking in the Great Strides Walk at Fort Taber, New Bedford, MA. I hope to raise money to support all the research that helps find a cure for Cystic Fibrosis. Sign up for my team if you want to walk with me. I turned 14 this past November and am now in the 8th grade. 

I'm excited to start high school this August. I stopped competitive dancing and am trying out sports. I played volleyball this past season and I really enjoyed it. Hopefully, I can go to a volleyball camp this summer so I can practice before trying out for the high school team. My favorite things to do are hanging out with my friends especially Natalie. Also, I enjoy riding my bike, jumping on the trampoline and going shopping!

My day starts early with breathing treatments before school and I bring my other medications to school to take at lunch. I recently started Trikafta again and it helps so much. I started some ADHD medication so my mind can stay focused on the Trikafta, as well as all of my other CF medications. I visit with my Boston doctors every few months and they help me to stay healthy. 

Many people have cystic fibrosis, which is a progressive, genetic disease that affects the lungs, pancreas, and other organs. Myself as well as many others face the sobering prospect of a shortened lifespan. I am thankful the doctors and the CF Foundation for working so hard to find ways to add tomorrows and years to my life.

The CF community and the CF Foundation have fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.