Nathaniel was diagnosed at birth with cystic fibrosis. Although we have been lucky with his health, this disease is progressive. He is active, loves soccer, football, and his buddies! Nate was approved for a new drug that targets the actual gene rather than symptoms called Trikafta. We are still working through some side effects but we have seen improvement! This drug is a miracle but comes along with severe side effects for some people in the CF community. Not every person can benefit. And this reason is why we still stride to help every single person with CF have a better quality and longer life.
These very promising treatments are due to this foundation and their tireless efforts to find a cure which is funded in part by these walks and fundraisers.
These positive and promising drugs are life changing but unfortunately there is still NO cure.
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows - progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation's pursuit of new therapies and provide vital support to meet the needs of the CF community.
Thank you to everyone who has helped on our journey to help everyone with Cystic Fibrosis!!
Your participation will help us get one step closer to ending this terrible disease. Let's make CF stand for Cure Found.