Dear Friends & Family,
What a year 2019 has been with the FDA approval of Trikafta, a combination therapy drug that is a truly transformational milestone in the fight against Cystic Fibrosis. After only a few weeks of switching from Kalydeco to Trikafta, Michelle's cough became nearly nonexistent. Ever since 2013, she had been on a rigid routine of antibiotics every 2 weeks to maintain her "good health.” The regimen has been deemed no longer needed, drastically cutting back on the number & frequency of antibiotics. Michelle has had a profound & emotional realization that she feels the healthiest she has ever felt and her life’s trajectory has been changed forever from what she thought it would and could be. Amazing . . . truly amazing!!!
The impact on other CF patients was even more dramatic when a change in their ability to breathe happened in a matter of hours, accompanied with an increase in their lung function. Just over 50 years ago, CF was a deadly disease with no research and no treatments; today, it is one of the most amazing stories in medicine BECAUSE OF YOU. Thank you for joining the F TROOP Team as a walker, fundraiser, volunteer, donor & so much more. As her parents, we think back to the day when she was diagnosed and the despair we felt, but your love & support gave us hope and your determination to make a difference never wavered. It is so hard to put into words, but we are beyond thankful and grateful.
We are going to continue the fight for those that are not eligible for the new drug whether it be because of their rare gene mutations, lung transplant medicines or something else. The Foundation is continuing the research for All CF patients and for the ultimate cure. We will continue the F Troop’s team mission for funding research by virtually supporting the CF Walk. We appreciate everything you have done and do for our cause; we are extremely blessed and grateful.
Michael, Maureen, Mariah & Michelle