Jim Coen

My Pancreas Pals Story

The JuJu Team has changed its name! Yes, Julia still has Cystic Fibrosis; she is on Trikafta and doing well. But unfortunately, Trikafta is not a cure, though it is a miracle drug. 

We have changed the team's name because Julia's dad has been diagnosed with Pancreatic Cystic Fibrosis. In 2022 Dan suffered from pancreatitis, which caused persisting abdominal pain. After other remedies failed. Doctors identified that Dan had Cystic Fibrosis and put him on Trikafta. He has not had a recurrence of pancreatitis. ​

Now we have two Cystic Fibrosis patients in our family. Dan has always had Cystic Fibrosis, we just didn't know.

Please help us find a cure for Cystic Fibrosis.

Nearly 40,000 people in the United States have cystic fibrosis: a progressive genetic disease that affects the lungs, pancreas, and other organs. 

Other moms, dads, sisters, brothers, daughters, sons, grandchildren, and friends face a shortened lifespan. I walk and fundraise for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support us and help us find a cure!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.

Do it for Julia, Dan, and others with this dreadful disease.