It's Spring again and time to gear up for the Great Strides walk for Cystic Fibrosis (CF) at Slater Park, RI (Saturday, May 7th, 2018, at 10 AM)! Cael, Keira, Craig, and I would love your support in raising money for the CF Foundation and finding a cure for CF!
I still remember our first CF Great Strides walk in Spring 2006, when Cael was barely six months old and just diagnosed with CF. We were terrified of the life-shortening disease and what it meant for Cael's life. We often thought about and dreaded the teenage years, a time when CF symptoms typically worsen and health goes downhill. We always felt like the medical treatments couldn't come fast enough - it was a frantic race against time. We needed medical breakthroughs to help stop the disease from getting worse before Cael hit his teen years. Thanks to the CF Foundation, there are now life-changing medical advances in CF research and clinical care, and we caught the wave just in time! Cael participated in a clincial trial testing one of the new "modulator" medications, and he now takes an even newer, and more precise, modulator medication called Trikafta. Cael is a thriving teenager! He still needs to manage his health through daily routines of medications, nutrition, respiratory treatments, and exercise. He has such a positive attitude and truly lives life to the fullest! He especially likes playing ice hockey and volleyball for his high school - go Mount St. Charles Mounties! He and his sister, Keira (aka upside down gymnastics girl) are close. They like to rough and tumble, jump on the trampoline, play Clash Royale on their phones, and baby our beloved dog, Tucker.
Please help our cause by (1) walking with team Cael and the Crusaders (sign up as a walker on our team, create a personal Great Strides page, collect donations from your friends and family, and show up to the walk either in person or spirit) or by (2) donating to my Great Strides fundraising campaign using my Great Strides webpage for an electronic donation or mailing a check to the Cystic Fibrosis Foundation (Rhode Island/ Mass chapter) with Cael and the Crusaders in the memo line. The Cystic Fibrosis Foundation organization is excellent, and 90% of the money goes directly to reasearch and the care centers (like Cael's at Boston Children's Hospital). We'd love to see you at the walk, but Craig and I also fundraise year round and welcome any ideas you have about some fun events to raise awareness and money for CF research. Thanks to all who have donated in the past - we certainly have made wonderful progress in adding tomorrows for Cael and the other children and adults with Cystic Fibrosis.
Thanks again and see you all soon,