Dear Family & Friends,
Spring is in the air! and the time of year when we ask for your support of Justin and Ross in our quest to cure CF.
This past October, we received amazing news. The drug Trikafta was approved by the Food & Drug Administration (FDA) and it is the first drug that treats the underlying problem in Cystic Fibrosis (the sodium-chloride transport in the cells of the body).
Trikafta was the drug Justin has been taking for the past 1.5 years in the clinical research trial. It has helped him to gain 30 lbs and has improved his lung function from the 40s to the low 70s. It has stayed at that improved level.
Ross was eligible to start taking Trikafta after Thanksgiving and at the time of his next appointment at Christmas, his lung function improved dramatically, and he too, like Justin, stopped coughing. It seemed like a miracle and we've been so excited as a family and have celebrated this major milestone.
This is not a cure for CF and there are many mutations which Trikafta does not treat, so our journey continues, until we can find the Cure.
Please join us again this year by helping us to raise money for ongoing CF research!
Thank you for your generosity and kindness !! UNTIL WE ARE DONE and until CF stands for CURE FOUND!
With gratitude, the Myerson Family (Joel, Kim, Justin, Michaela & Ross)