Dear Friends and Family,
It's that time of year again...to raise awareness of Cystic Fibrosis! My niece, Clare, is 13 years old and was diagnosed with CF at birth. Please consider supporting me and my family as we raise money to help cure Cystic Fibrosis. Over these last 13 years, our national "Cruisin' for Clare" Great Strides team has raised over $180,000!!! to support CF research - we can't thank you enough for donating each year! Your support truly means the world to our family.
What is CF? Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system. A defective gene and its protein cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond. Additionally, this is a momentous year for her from a medication standpoint - if all goes as planned, the FDA will approve the drug Trikafta for Clare's age group by JUNE! We have heard many CF families having positive results from Trikafta and can’t wait for Clare to also see these benefits.
At 13 years old, Clare is managing her health as if she were an adult. She knows how many enzymes to take before her meals and she can list all of the medications she uses and why she uses them. She does two vest treatments a day, nebulizer treatments, and swallows 25+ pills on a daily basis to name a few. She is BRAVE during her blood draws & tummy aches and still has plenty of energy for ballet, hip-hop, flag football, baking and keeping up with her 2 older brothers! Thanks to all of this and all of you, Clare makes living with CF feel normal.
Please consider donating, as 2023 holds so much hope. Every donation gets us closer to a cure.
Walk with us. Donate. Breathe. So that Clare can breathe a little easier, too.
Love,
At 13 years old, Clare is managing her health as if she were an adult. She knows how many enzymes to take before her meals and she can list all of the medications she uses and why she uses them. She does two vest treatments a day, nebulizer treatments, and swallows 25+ pills on a daily basis to name a few. She is BRAVE during her blood draws & tummy aches and still has plenty of energy for ballet, hip-hop, flag football, baking and keeping up with her 2 older brothers! Thanks to all of this and all of you, Clare makes living with CF feel normal.
Please consider donating, as 2023 holds so much hope. Every donation gets us closer to a cure.
Walk with us. Donate. Breathe. So that Clare can breathe a little easier, too.
Love,
Jenny, Kip, Bennett & Sarah
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.