Kortnie Sands

My Great Strides Story

My daughter Ianthia-Louise was born April 28th 2022. In Worcester, Ma. She was born with meconium illeous. She had surgery at just 20 hours old. She spent her first month of life in the NICU at Umass Memorial Medical Center. She has had several admissions her first year of life. Despite her rough start Ianthia is a superstar and continues to thrive.Ianthia recently became a big sister and takes the utmost pride in her role as big sis. She loves singing to her baby sister and loving on her. Ianthia loves to sing and when she’s not busy chasing her older twin brother and sister she can be found singing. Bingo and twinkle twinkle are her fav, also post Malone She enjoys food and loves trying new things but Yo yo (yogurt) is by far her favorite. She loves to dance. She loves bath time (extra bubbles) and loves to spend her mornings watching Elmo or Mickey Mouse. She loves to run around and is always smiling and laughing. Ianthia is quite the jokester and could brighten anyone’s day effortlessly. She also is very compassionate and gives the best hugs.She loves to be outside and playing. She loves puppies.Ianthia brings such a light to all lives who cross her path. We are truly blessed to have her. Although she is full of light her life is not the easiest. She has daily treatments (CPT) and Nebulizer treatments is on multiple medications including enzymes for each meal and snack she has. She is in CF clinic regularly and in close contact with all her specialists at all times. Our hope is to raise money and awareness so other babies like Ianthia can live a long enjoyable worry free life. As any child should. A child should never have to worry about their health or spend a lot of time in a hospital. I’d love to see a cure for my daughter and all children in my lifetime. 

Please Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this  team" button. From there, you can donate and start fundraising.  

As always thank you -The sands Family

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.