Nathaniel And Cynthia Paine

GREAT STRIDES WALK FOR CYSTIC FIBROSIS

Dear Family and Friends:

I was diagnosed with CF when I was five months old. My first year was very tough. CF hit my digestive system. I wasn't able to keep anything in me. The doctors changed my formula, I needed something easier to digest. I also had a vitamin deficiency, the normal low is a thirty-eight, my level was a two. Because of the vitamin deficiency I had increased pressure in my head. I had a spinal tap to relieve the pressure and I was in Pedi-ICU. My parents were very cautious with me when others were sick. I had pneumonia Christmas week of 2004. My parents worked very hard giving me chest therapy and nebulizer treatments to keep me out of the hospital. I was able to spend Christmas at home.

*UPDATE "2023" - I take one prescription every time I eat or drink (I am on a high fat, high calorie diet).  I also take Vitamin D daily. I use the Vest twice a day for 20 minutes for my chest therapy (helps loosen the mucus so it doesn't settle in my lungs). I am using an inhaler and taking Sodium Chloride with the nebulizer daily before using my vest. I am doing great with my breathing test. I was diagnosed with CF related diabetes.  I am taking insulin & have to watch my carbs.  I graduated from Quinsigamond Community College, I went for music. As of now I work at Shaw's Supermarket & Core-Mark until I find something within my field of interest.

On May 11, 2024 I will be virtually walking for Great Strides to raise money for the Cystic Fibrosis Foundation. Please help me meet my team fundraising goal of $1000.00. Cystic Fibrosis is a life-threatening genetic disease that affect the lungs and digestive system.

Advances continue to be made in finding a cure, but your help is needed now, more than ever, to keep up the momentum of this life saving research. For the first time in the CF Foundation's history, scientific opportunities are coming at a pace that is exceeding our ability to fund them.

Thank you,

Nathaniel Paine (Team Nathaniel)