My Great Strides Story
I’ve been inspired my entire life by Megan. As on older sister to a CF fighter, I’ve grown up admiring her strength and perseverance through innumerable medications, treatments, and hospital stays. Most inspiring of all has been watching Megan hold her spunky, creative and kind energy despite every obstacle she’s faced.
Megan’s F508 gene mutations makes her eligible for Trikafta. After participating in Vertex’s clinical trial, she was put on the life-changing therapy through open enrollment in 2018. Trikafta has drastically changed the quality of Megan’s life for the better - but that isn’t the case for all CFers and their families. There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.