Amanda Coen

My Great Strides Story

Julia, who is now 7, is a smart, funny kid who loves reading, dinosaurs and being outside. She works hard to keep herself healthy and we are all always monitoring her to make sure she stays as healthy as she's been. She is so lucky to be able to take trikafta with no side effects! This medication and many more coming up through the pipeline are thanks to the donations for many years before this one!​ This year we have a double team, because we now know Dan has CF, too. These pancreas pals work  to keep themselves healthy, together!

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.