My name is Julie Flower and I would like to introduce you to Team Gabrielle. Team Gabrielle is made up of supporters working to find a cure for Cystic Fibrosis. This group was formed seven years ago in support of my daughter Gabrielle, who was diagnosed at two weeks of age with Cystic Fibrosis. The Cystic Fibrosis Foundation has helped us with learning about this diagnosis, provided us with support of other families with CF, and how we could help raise funds for research to find a cure.
Cystic Fibrosis is a life threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. There are approximately 30,000 Americans living with cystic fibrosis. The symptoms and severity of the disease vary according to the genetic defect that caused it, as well as patients’ age and other existent conditions. Similarly, the symptoms are not constant and differ over time. Gabrielle has been hospitalized three times over the last few years for CF treatments. Gabi is ten years old and is currently in fifth grade this year. She loves to play with her friends and her twin sister, Olivia. She made the alpha role at school, is in Girl Scouts, and will be in the school play next month. She takes multiple medications daily with every meal and snack to assist in digestion. She is now up to taking ten pills just with her morning breakfast alone. In addition to medications, she has multiple daily breathing treatments and pulmonary vest therapy daily. She has a pediatrician, a pulmonologist, an endocrinologist, a GI doctor, and a nutritionist. My girl, she handles all of this with a smile and infectious laugh.
The Cystic Fibrosis Foundation Great Strides Walk is held every year in May. This is the foundation’s biggest fundraiser of the year and walks occur all over the country. Team Gabrielle has participated in the walk for the last seven years. We fundraise every year for months, holding different events to raise funds which all go to the foundation and research to find a cure. Our goal is that Gabi will have the chance to grow up and have the same chance as any other child to have a long and healthy life. We acknowledge all our sponsors, either on a team banner which is displayed at the walk and on social media. With a $150 donation, your business name will be on our Team Gabi banner displayed at the Great Strides Walk. With a $300 donation, your business name will be on our Team Gabi Great Strides walk shirt and banner. With a $500 donation, your business name will be on the Team Gabi Great Strides walk shirt and banner as well as the official CF Foundation Great Strides walk shirt.
I am looking forward to working with you and your business to continue our fight to raise funds for finding a cure. It is with the generosity and kindness of others that I know we will reach our goal, to find a cure for Cystic Fibrosis and for Gabi.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.