One of my earliest roles on this earth was of "little brother" to the fantastically strong and vibrant Elizabeth Marie Reyna.
Unbeknownst to my amazing parents Ann Long Reyna and Scott Reyna, Liz was born with a genetic disease called Cystic Fibrosis (CF). As an infant, she was officially diagnosed, and was given a life expectancy of 5 years old.
Because of her strength, perseverance, and willingness to opt into innovative medical studies throughout her lifetime, Liz is a now a woman full of life, hope, and warmth. Due to the medical advances in her lifetime, a fantastic new "corrector" drug has made the past few years of her life some of her most active, engaged, and energized! She has a new lease on life, full of dancing in the streets of New Orleans, taking up new hobbies, and taking care of herself in ways we never thought we'd see.
We love our Liz, and we couldn't be happier for her medical success. Unfortunately, her story is not the case for all CF patients. The corrector drug must be tailor-made to each specific Cystic Fibrosis genetic mutation, and so many CF patients eagerly await their turn to taste the new life Liz has been afforded.
Please consider a donation to my Great Strides fundraiser in support of Team Reyna. Let's continue to support the research and important work funded by Cystic Fibrosis Foundation to make sure that in the future, CF stands for CURE FOUND.