On April 26th we will be walking for our Savannah Rose. She was born on June 14th, 2019, and we received the devastating diagnosis on 6/21/19. Cystic Fibrosis is a rare genetic disorder that effects almost every system in the body. At one time, it was a devastating childhood disease with a very short lifespan. The Cystic Fibrosis Foundation has donated and lead the way on many research projects that will hopefully add years to our daughter's life. Not only have they given us more tomorrows with our sweet Sissy, but they provide many families with cystic fibrosis grants to afford the medications and supplements that may otherwise not be obtainable.
To participate, just click on the "Join our Team" button. From there, you can make a donation if you choose. There is no obligation.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.