On May 5, 2004 Xavier was diagnosed with Cystic Fibrosis. It was a devastating diagnosis, so I promised to provide Xavier with the life he deserved, a life full of love, faith, happiness, and hope. Xavier had all of that and more. He experienced adventures. He enjoyed school. He had amazing friends. In June 2017 he received the gift of a lifetime, a double lung transplant and the chance to breath easy.
Sadly, on April 9, 2018, after developing an infection in his new lungs, Xavier lost his battle to Cystic Fibrosis.
Xavier was a BIG advocate for himself and those with Cystic Fibrosis, he dreamed of a cure for this horrible disease. In 2011 he wrote:
Hello Friends & Family, It's me, Xavier. I am 8 years old. I am in the 2nd grade. I like to play video games, watch T.V., draw pictures, read, and play with my friends. When I was 18 months old I got very sick. I had to stay in the hospital for a lot of days. The doctor told my parents that I have Cystic Fibrosis, also called CF. CF means that I have lots of mucus in my lungs. The mucus makes me cough a lot. The mucus in my body also keeps me from gaining weight like my friends do. I have to take lots of medicines to keep me healthy. I also have to do a special treatment that shakes my body. The treatment keeps the mucus from sticking to my lungs. All the medicines and treatment I take are made possible by the Cystic Fibrosis Foundation. Every year we participate in Great Strides, the foundation's biggest fund raiser. Please join my team, Xavier's Warriors and help me raise money to find a cure. I can't wait to see you at one of the walks. If you can't make it, that's OK, you can still help by making a donation. Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!
Join Xavier's Warriors and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today! This year Xavier's Warrior will be participating in Great Strides in Tempe Beach Park on Sunday, April 26, 2020.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.