Paisley and Liam were diagnosed at birth with Cystic Fibrosis (CF), a progressive, genetically inherited, life-threatening disorder that is damaging to the lungs and digestive system.
Presently, the average life expectancy of someone living with CF is 50 years, but I believe in a future where my children, and others like them, will no longer have to live with an expiration date stamped on their timelines.
Over the last two years, both Paisley and Liam have overcome several obstacles, each time beating the odds stacked against them. The have battled back-to-back viral infections, bacterial colonization, and extreme malabsorption as a result of this disease. They are brave, resilient and courageous, even at such a young age. Every person they meet is met with a vibrant smile and exuberant brilliance despite the silent and devastating battle they face each and every day.
They have CF, but CF does not have them.
Our family has been so fortunate to have gained a rallying support system eager to learn more about CF and what they can do to provide Paisley and Liam with their best chance at a long, healthy life full of joy, hope, and purpose.
Our children are fighters, and now it is time for us to fight for them.
Join my family in our journey to fundraise more money towards CF research and support. They say it takes a village, and right now I’m sending out a call to action for ours to come together to fight for a future where CF stands for “Cure Found” and no parent must ever again feel that devastating heartbreak of being told their child’s life could be cut short because of this disease.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.