On May 5, 2004 Xavier was diagnosed with Cystic Fibrosis. It was a devastating diagnosis, so I promised to provide Xavier with the life he deserved, a life full of love, faith, happiness, and hope. Xavier had all of that and more. He experienced adventures. He enjoyed school. He had amazing friends. In June 2017 he received the gift of a lifetime, a double lung transplant and the chance to breath easy.
Sadly, on April 9, 2018, after developing an infection in his new lungs, Xavier lost his battle to Cystic Fibrosis.
Xavier was a BIG advocate for himself and those with Cystic Fibrosis, he dreamed of a cure for this horrible disease. In 2011 he wrote:
Hello Friends & Family, It's me, Xavier. I am 8 years old. I am in the 2nd grade. I like to play video games, watch T.V., draw pictures, read, and play with my friends. When I was 18 months old I got very sick. I had to stay in the hospital for a lot of days. The doctor told my parents that I have Cystic Fibrosis, also called CF. CF means that I have lots of mucus in my lungs. The mucus makes me cough a lot. The mucus in my body also keeps me from gaining weight like my friends do. I have to take lots of medicines to keep me healthy. I also have to do a special treatment that shakes my body. The treatment keeps the mucus from sticking to my lungs. All the medicines and treatment I take are made possible by the Cystic Fibrosis Foundation. Every year we participate in Great Strides, the foundation's biggest fund raiser. Please join my team, Xavier's Warriors and help me raise money to find a cure. I can't wait to see you at one of the walks. If you can't make it, that's OK, you can still help by making a donation. Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!
Join Xavier's Warriors and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today! This year Xavier's Warrior will be participating in Great Strides virtually on December 4, 2021.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.