Dear family and friends,
It is time again for us to ask for your help in funding research to find a cure for Cystic Fibrosis.
As you all know, we do fund raising every year at this time in support of the CFF Great Strides Walk. The walk is scheduled on April 26th this year.
Jennifer is 18 now, and a beautiful and accomplished young woman. Her courage and determination are truly amazing. She pushes herself to achieve excellence in whatever she does. She will graduate from high school this year with highest honors. She is currently visiting colleges to determine which one she will attend in the Autumn. For all of her family this is a joyful, but frightening time! Thinking of her being out of state, away from her family, will give us all worried times and sleepless nights – especially her mother, Carole! However, we know that Jennifer is a strong young woman and will always make sound decisions regarding her lifestyle choices, and physical care.
Jennifer continues fighting for survival with her rigorous routine of medications, breathing treatments, and hospital and clinic visits. She has become quite self-sufficient in managing her health issues. You would never know how ill she is by looking at her or listening to her optimistic view of life.
Her love is being outdoors, and hunting with her family. She has achieved much fame in her pursuit. In 2018 she set an impossible goal for herself. Knowing that her life would be shortened by Cystic Fibrosis, she was inspired by the Wounded Warriors with whom she hunts. She wanted to have the chance to achieve something spectacular during her life. She asked her parents if she could go sheep hunting. Her parents were shocked by this request!! This is a very challenging goal for any healthy person to achieve, much less someone with only 50% lung function!! However, they told Jen that she could achieve anything she set her mind to do. With reservations and concern about her health, they set about helping her to get into shape and train for this impossible goal!! It was a very difficult and uphill climb, literally, to get into shape physically for this! Jennifer, undeterred by the difficulty, set a seemingly impossible goal for herself of hunting all Four North American Wild Sheep!!
JENNIFER ACHIEVED HER GOAL -A GRAND SLAM!!!
I am attaching a link to youtube. This is a video of Jennifer’s amazing hunting achievement!! In doing this, she became the first person with CF and the 2nd youngest female to achieve this goal!! It is about 90 minutes long, but well worth your time. It will give you a clear understanding of the kind of person Jennifer is – Tougher Than Nails!!
Here is some wonderful news in which you have played a great part!! Jennifer was very blessed in late 2018 to become a participant in a drug trial of a new CF medication, which is producing miraculous results. This new trial medication, along with the extraordinary strenuous training Jennifer has undergone has raised her lung function value from 50% to 77%. The makers of this drug estimate that it could help 90% of the CF patients!!! The drug will not cure CF, but it will help mitigate the damage caused to CF patients by reducing inflammation and helping them breathe.
Miraculously, the drug was approved by the U.S. Food and Drug Administration on Oct. 21, 2019!! It was a huge day of celebration in the Cystic Fibrosis community!!
It is because of donations from people like you that this drug research is possible. Thank you so much for supporting Jennifer’s cause through the years!! You are helping Jen have more tomorrows.
Please help us raise funds to continue the research. We hope and pray that someday CF will stand for “Cure Found”!!
you can donate on this website.
Donations are tax deductible. If you prefer to mail a check to us, please endorse it to CFF, and mail to us at:
Manny and Sue Griego
9634 N 24th St
Phoenix, AZ 85028
God bless you for your help!!