On May 5, 2004 Xavier was diagnosed with Cystic Fibrosis. It was a devastating diagnosis, so I promised to provide Xavier with the life he deserved, a life full of love, faith, happiness, and hope. Xavier had all of that and more. He experienced adventures. He enjoyed school. He had amazing friends. In June 2017 he received the gift of a lifetime, a double lung transplant and the chance to breath easy.
Sadly, on April 9, 2018, after developing an infection in his new lungs, Xavier lost his battle to Cystic Fibrosis.
Xavier was a BIG advocate for himself and those with Cystic Fibrosis, he dreamed of a cure for this horrible disease. In 2011 he wrote:
Hello Friends & Family, It's me, Xavier. I am 8 years old. I am in the 2nd grade. I like to play video games, watch T.V., draw pictures, read, and play with my friends. When I was 18 months old I got very sick. I had to stay in the hospital for a lot of days. The doctor told my parents that I have Cystic Fibrosis, also called CF. CF means that I have lots of mucus in my lungs. The mucus makes me cough a lot. The mucus in my body also keeps me from gaining weight like my friends do. I have to take lots of medicines to keep me healthy. I also have to do a special treatment that shakes my body. The treatment keeps the mucus from sticking to my lungs. All the medicines and treatment I take are made possible by the Cystic Fibrosis Foundation. Every year we participate in Great Strides, the foundation's biggest fund raiser. Please join my team, Xavier's Warriors and help me raise money to find a cure.
I can't wait to see you at one of the walks. If you can't make it, that's OK, you can still help by making a donation. Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!
Please support me!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to my Great Strides fundraising campaign today!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help me reach my fundraising goal!