We chose the name Salty Cousins for Kenny and Jasmine. Cystic Fibrosis hit our family hard nearly 28 years ago when Kenny was diagnosed with CF. He was eight years old. At that time, the life expectancy for CF patients was only about 19 years old. Kenny is 36 and the father of an amazing 9 year old. Kenny is an inspiration to every person living with CF. He is now taking the drug, Kalydeco. This new breakthrough drug has seen amazing success in increasing the lung function of CF patients. This is the first time Kenny has been prescribed medication that improves his health and doesn't just keep him from getting worse! Kalydeco is a life changer and has been made possible by research funded by your donations! Our other "Salty Cousin" Jasmine was 6 months old when diagnosed. Jasmine is a true CF Warrior. She has spent too many days to count in the hospital, but she always has a smile on her face. She is a fierce and tenacious fighter. Recently, Jasmine began taking Orkambi, which helps maintain her lung functioning. This is Jasmine's 2nd time starting Orkambi and our family is extremely hopeful that she will benefit from this treatment. Your donations have made these two drugs possible! So please know that every single dollar helps to add tomorrows and makes todays healthier for every single person with Cystic Fibrosis.
There are about 30,000 Americans with this disease. It is not common but it is devastating to those who suffer and to those who love them.
The Great Strides walk is an annual event held to raise not only money but CF awareness. This year's walk is Sunday, April 22nd. We will walk not only for Kenny and Jasmine, but for our princess warrior Liv and for every other person fighting the fight. We will also walk to honor the memory of those we've lost, including our precious Gabby Porras.
Will you join us? By becoming a member of our team and making a donation, you are joining a growing group of folks committed to finding a cure for Cystic Fibrosis. Help us add tomorrows to the lives of those living with CF.
Simply go to cff.org and look for the Great Strides walk. Sign up with Salty Cousins!