Reagan Coniglio

My Great Strides Story

It was with Reagan’s newborn screening that we learned she was born with Cystic Fibrosis. Both Levi and I had no idea what it was or how to handle it. No one on both sides of our family were familiar with the diagnosis. Quickly we were introduced to the CF foundation and met the amazing CF team at PCH where Reagan received all the medications she needed that took away the hunger pain, uncontrollable stools, insufficient vitamin levels, and the start of therapies to keep her lungs clear.

Levi and I were taught chest physical therapy for an infant using a gentle but firm hit with a rubber piece all around her chest. Most babies don't have their first taste of food till 6 months old but Reagan was swallowing apple sauce and enzymes at 12 days old, like a champ.

The day we received the call explaining her diagnosis we questioned so many things from how her life would look to should we be relocating our family closer to the hospital.

The Cf foundation has paved a path that parents, newly introducing their baby into the world, no longer have to ask. Her life is beautiful and we get to live wherever fits best for our family. 

Because of the CF foundation, doctors, and partners

Reagan gets to live a normal life with a few added steps 

She has full access to all her medical needs

She gets to be apart of a community that knows exactly what she's going through

A community that is full of hope that in all situations- supports her

She gets to run a muk alongside her sisters with no boundaries

She gets to complain and bargain doing therapy and taking medications because its readily available to her

Research, medicine, and therapies that have given us the opportunity of living a full life with her 

And yet so much more but most of all the Foundation shares with us a mission we pray for every single day, a cure. 

Thank you all for supporting a foundation that supports those battling Cystic Fibrosis like Reagan.

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them. 

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.