The Queen B herself, the madame, the Diva, miss little Sass Ella was diagnosed with Cystic Fibrosis when she was still growing in her mother’s belly. Having no idea what CF was, we researched the diagnosis and were scared to say the least. However, we were determined to find the perfect balance of keeping her healthy, and letting her enjoy her life to the fullest. Anyone who's ever met Ella knows that's exactly what she does - she lives life to the fullest! This angel is a ray of sunshine wherever she goes. She has brought so much laughter and happiness into the lives of her friends, family, teachers, and everyone who has the pleasure of knowing her. We thank God for the medicine, treatments, and continuing research being done to help her and other CF patients stay as healthy as possible. The Great Strides Walk is her favorite event all year because she gets to be surrounded by ALL the people she loves! Come walk with us, and have some fun with Ella at Great Strides :)
Donations and t-shirts are optional, and of course appreciated. Your presence at the walk means more to Ella than you'll ever know!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.