Greetings friends and family. It is that time of year again..... The Poche's annual appeal to raise money and awareness for the Cystic Fibrosis Foundation, CFF.
We have been doing this for a whopping 21 years and have made significant progress in assisting the CFF provide new therapies for Jeffrey and Samantha. There has been many changes to our annual fundraising routine from year to year but one thing remains constant - donations help CF stand for Cure Found.
CF is such a rare disease, therefore in order to provide incentive for biotech and pharmaceutical companies to research new treatments for a cure, the CFF provides financial support to encourage companies to focus on CF and help advance therapies that would be unlikely to move beyond clinical trials. Jeffrey is now 22(has CF), Frank 20 and Samantha 18(has CF) We have seen so much progress since Jeffrey’s diagnosis in 1999.
Presently, Samantha and Jeffrey are taking 7 medications that were funded by the CFF.
There is tremendous news on the horizon for people with Cystic Fibrosis.
We are here at this point in life because of the amazing support you have given our family.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.