Most of you know my sister, Jessica, has Cystic Fibrosis (CF). In short, CF is a genetic disease that results in life-threatening lung infections and digestion problems. When Jessica was born we were told she likely would not reach age 8; but if she did, she had a 50% chance of living to 16.
The disease is still tagged as “incurable and fatal”; however, there is greater hope for a cure now than ever before. In fact, recently, a drug has been developed that that helps get rid of much of the mucus so it doesn’t build up and create a haven for deadly bacteria. While it only benefits patients with certain defective genes, this is a huge and exciting milestone. I truly believe we could see the cure for CF in the next few years.
Jessica is now 45 years old and the median predicted survival age is close to 40. Far surpassing her prognosis at birth, the progress we have seen over the years is remarkable! Ultimately, of course, the thanks goes to our loving God; but, the earthly credit goes to the Cystic Fibrosis Foundation. CFF is at the top of the list of research foundations in terms of its success and efficiency with its money.
The current fund raising venue is called GREAT STRIDES, and I am asking you to consider contributing toward the cure through this campaign. Any amount will be much appreciated. You can make a secure donation by clicking the link below "Join our Team" To learn more about the CFF, please visit www.cff.org. I can assure you, your tax deductible gift will not be wasted. This charity produces results you can see.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.