My Great Strides Story
My family is very new to the cystic fibrosis world, in January 2023 our daughter Delilah came into this world with a bang, and not a very good one.
She was born with meconium ileus and has surgery in the first 24 hours of life, she had an extensive NICU stay for 4 months in Baton Rouge, and then transferred to Houston for another 3 weeks. She is 1 now and doing pretty great, she’s full of life and a little hurricane, she doesn’t let anything stop her! However Cystic Fibrosis is still there and will always be unless people like you and I raise the funds to make CF stand for cure found
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.