For 36 years our family has been committed to finding a cure for cystic fibrosis. Finally, in November, 2019, a drug was created that changed Randi's life! For the first time in decades, Randi is now able to sleep all night witout her chronic CF cough! With more sleep comes more energy and more LIFE! And...for the first time in her life, Randi is experiencing something you and I take for granted...the ability to breathe! We are blessed beyond measure! The journey has been long and grinding..Hospital stays, bad days, horrible nights, lung infections and with it all, we've had lots of good days, great days, and made a host of wonderful friends! Our attitude and belief never wavered! We knew the hard work and daily dedication to her health would one day PAY OFF! And it has, in a big way for a majority of the CF population!
But, there is much more to do! While this new miracle drug Trikafta is blessing, those CFer's under the age of 12 are eagerly awaiting their miracle! Trikafta is a mircle drug for those over the age of 12 but be clear, it is not a cure! There is so much research in the pipeline and we know that soon CF will stand for Cure Found. We must journey forward and be focused with 2020 Vision to help end this disease!
You can be a huge part of this mission! This is our ONCE a Year Fundraising Campaign that culminates on Monday, Feb. 17 from 2-5 PM at Skate Palace. We've held this date sacred in our family for 36 years! It's always a school holiday and its an opportunity for everyone to participate, whether online or on skates!
Our family is blessed to have the support of our communities and friends that live afar! So many families have participated in this event and so many have generously gave! So many kids have circled the rink at Skate Palace to help us ROLL OVER CF!
We thank you all!