Landon and Karlee (CF warriors)
My Great Strides Story
We are on a Misson to find a cure for Cystic Fibrosis. Our babies, Landon (12 years old) and Karlee (6 years old) were both diagnosed through newborn screening around 3 weeks of age. We have participated in Great Strides ever since Landon was born and a few years ago became a nationally recognized team. Throughout the entire year we fundraise in an effort to advance medical research for those living with this disease. We have seen tremendous progress throughout the years and these new medications have shown vast improvements. We have also witnessed the benefits of our fundraising efforts by Landon and Karlee both receiving access to an incredible life saving medication called Trikafta. This medication has shown that it may change the course of this disease for some, but we still need a cure. We have such passion and hope that a cure is not too far out of reach. We would greatly appreciate any small contribution towards our efforts and hope that you will help us in the fight! Unfortunatley the Cystic Fibrosis Foundation doesn't receive a dime from the government for funding so it is detrimental that we raise as much money as possible to get these medications to the patients as soon as possible. Time is of the ESSENSE since people die every day from this disease. We appreciate how much support our family has received from the community over the years and we hope that you will join our team and walk with us on September 23rd at 9 am at Walnut Grove in Lake Charles, LA. Hoping to make CF stand for Cure Found ASAP!!!
Join our team and help add tomorrows!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.