Our babies, Landon (11 years old) and Karlee (5 years old) were both diagnosed through newborn screening around 3 weeks of age. We have participated in the Great Strides Walk event for CF ever since Landon was born. Throughout the entire year we fundraise in an effort to advance medical research for those living with this disease and hopefully one day find a cure for them. We have seen tremendous progress throughout the years and these new medications have shown vast improvements. We have also witnessed the benefits of our fundraising efforts by Landon finally being able to have access to an incredible life saving medication called Trikafta. This medication has shown that it may change the course of this disease for some but we still need a CURE.. There are also a percentage of those in our CF community that aren't eligible to take Trikafta so we are continuing the fight!!! We have such passion and hope that a cure isn't too far out of reach and it is because of you that we are able to have such HOPE for the future of all those that live with this disease. We would greatly appreciate any small contribution towards our efforts and hope that you will help us in the fight! Unfortunatley the Cystic Fibrosis Foundation doesn't receive a dime from the government for funding so it is detrimental that we raise as much money as possible to get these medications to the patients as soon as possible. Time is of the ESSENSE since people die every day from this disease. We appreciate how much support our family has received from the community over the years and we hope that you will join our team and walk with us on September 24th at 9 am at Walnut Grove in Lake Charles, LA. Hoping to make CF stand for Cure Found ASAP!!!
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the link. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.