Most of you know my sister, Jessica, has Cystic Fibrosis (CF). In short, CF is a genetic disease that results in life-threatening lung infections and digestion problems. When Jessica was born we were told she likely would not reach age 8; but if she did, she had a 50% chance of living to 16.
The disease is still tagged as “incurable and fatal”; however, there is greater hope for a cure now than ever before. In fact, recently, a drug has been developed that that helps get rid of much of the mucus so it doesn’t build up and create a haven for deadly bacteria. While it only benefits patients with certain defective genes, this is a huge and exciting milestone. I truly believe we could see the cure for CF in the next few years.
Jessica is now 45 years old and the median predicted survival age is close to 40. Far surpassing her prognosis at birth, the progress we have seen over the years is remarkable! Ultimately, of course, the thanks goes to our loving God; but, the earthly credit goes to the Cystic Fibrosis Foundation. CFF is at the top of the list of research foundations in terms of its success and efficiency with its money.
The current fund raising venue is called GREAT STRIDES, and I am asking you to consider contributing toward the cure through this campaign. Any amount will be much appreciated. You can make a secure donation by clicking the link below "Join our Team" To learn more about the CFF, please visit www.cff.org. I can assure you, your tax deductible gift will not be wasted. This charity produces results you can see.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.