Charlie is an amazing boy with a captivating smile big, beautiful eyes bursting with the passion, joy and innocence of a child who is just beginning to discover the wonderful world around him. Charlie is also a little boy living with Cystic Fibrosis (CF), a disease that complicates an otherwise carefree childhood and threating to rob him of his very life that he so passionately enjoys.
Charlie was diagnosed with CF at only two weeks, his mother had a normal pregnancy with no complications until the day he was delivered by emergency "C" Section due to his stomach being distended. At the time of his birth he was diagnosed with Meconium Ileus and underwent several surgeries and was in the NICU for over 3 months.
A typical day for Charlie includes broncodiators and many other oral medications commonly prescribed to those with Cystic Fibrosis including Enzymes at each snack and meals. Charlie uses a high frequency chest compression vest for airway clearance and has a feeding tube for high calorie supplements due to pancreas issues that cause him to lack absorbion of nutrients.
The most difficult thing is to remain disciplined with a daily regimen and still make sure Charlie is given the chance to just be a kid.
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devastating disease.
I walk for Charlie and all those battling this disease. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community.
Please support me!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.