After starting our journey in Central Oregon and participating in 3 Great Strides walks surrounded by friends and family we have moved to Texas. Family will still be participating in Oregon so we have taken our team National. Help support us in Portland, Oregon as well as San Antonio, TX and New Barunfels, TX.
CF is a disease in which you can look fine on the outside but inside you could be falling apart. You never know when your child may become ill and that illness can cause irreversible damage to their lungs. One tiny cold that may not be a big deal to others could cause a hospital admission for our children. We fight everyday to keep them as healthy as possible.
Please support us by making a donation in any amount possible. Even the smallest amounts add up, be it $5, $20 or even $50. If you cannot spare even a small amount please support us by sharing our story and spreading awareness.
Great things are in the works that could drastically extend our children's lives so they may hopefully outlive us. Help us give Neila and Von every opportunity to our live us.
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Neila and Von make up only 2 of the approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them and hope you will support us in our efforts.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.