Gabriel Huggins is my rainbow baby. We did not find out right away about his CF diagnosis til he was close to a month old. It took all of us by surprise.As far as we could tell he was just a healthy baby boy. At his first check up we noticed as all babies do that he lost some of his birth weight. He was eating fine and seemed to be thriving. But, at his next appt we noticed he wasn't gaining weight at all if anything he was maintaining right around his birth weight. He had newborn screening done which pointed out that he could have CF. His Dr. then had us go to a CF Dr. to get a sweat test done. We waited about less then a hour before we got the call telling us what we didn't want to hear and that was ...that our precious boy had Cystic Fibrosis. From then on our lives changed. We had to explain to our 8 year old and family about Gabriel s condition. It is new for all of us to acknowledge. Everything from the pills, to his chest therapy, to small doses of salt, and other treatments that seem to keep coming. As of right now they tell us he looks great and thanks to his meds and treatments he is putting on weight, and his lungs and others organs seem fine. So everything we are doing is preventative at the moment to help give him a better chance at a future. All we want is for him to grow up the same as everyone else, to know he is loved and to live a long happy life surrounded by people that love and support him.
He is a happy baby that loves his mom, dad, and brothers. He lights up the room with his smile. He is my little angel /superman.
Please help us walk and donate towards providing him and others with a future.thank you
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
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Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.