Gabriel Huggins is my rainbow baby. We did not find out right away about his CF diagnosis til he was close to a month old. It took all of us by surprise.As far as we could tell he was just a healthy baby boy. At his first check up we noticed as all babies do that he lost some of his birth weight. He was eating fine and seemed to be thriving. But, at his next appt we noticed he wasn't gaining weight at all if anything he was maintaining right around his birth weight. He had newborn screening done which pointed out that he could have CF. His Dr. then had us go to a CF Dr. to get a sweat test done. We waited about less then a hour before we got the call telling us what we didn't want to hear and that was ...that our precious boy had Cystic Fibrosis. From then on our lives changed. We had to explain to our 8 year old and family about Gabriel s condition. It is new for all of us to acknowledge. Everything from the pills, to his chest therapy, to small doses of salt, and other treatments that seem to keep coming. As of right now they tell us he looks great and thanks to his meds and treatments he is putting on weight, and his lungs and others organs seem fine. So everything we are doing is preventative at the moment to help give him a better chance at a future. All we want is for him to grow up the same as everyone else, to know he is loved and to live a long happy life surrounded by people that love and support him.
He is a happy baby that loves his mom, dad, and brothers. He lights up the room with his smile. He is my little angel /superman.
Please help us walk and donate towards providing him and others with a future.thank you
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.