Julieta Villarreal

My Great Strides Story

Welcome to our Great Strides team page! This is the first time we participate in this event. We are walking in support of all those who have Cystic Fibrosis, in those are Jeilanie and Jaziel. 

Jeilanie is a 5 year old with a sassy attitude and bubbly personality. Jaziel on the other hand is a 2 year old with a caring soul. They both have the same mutation, Double Delta F504. It was a shocker to our family when Jeilanie was diagnosed since neither sides of the family knew what CF was. A lot of emotions occurred at the time but thanks to Dr. P. Nolan in Driscoll's CF center we were able to understand and see the diagnosis in a different perspective.

Due to the CF community and the advances in medicine a person with CF can now live a normal life with treatments and medication. We are blessed to have those advances because these two little ones can have a normal life aside from their daily treatments and medications. 

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

By supporting our fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.