Hello Im KittyBear!!! I am now 8 years old and thriving well. I was diagnosed with CF at 21 days of age and I have been doing quite well. This is all thanks to the research that has been done. I have quite the regimen of medications and therapies to do on a daily basis. Every day I get a dose of albuterol, followed by saline through the nebulizer, and then chest physical therapy (it use to be pow pow, but now I wear a vest). This process is done twice a day. I just started taking the new gene therapy medication (Trikafta). This medication helps to partially correct the CFTR protein which helps to Target the underlying cause. It has improved lung function, has decreased pulmonary exacerbation, and has decreased the sweat chloride. On a daily basis I get chest therapy twice a day, an enzyme before every meal and snack, a daily vitamin, and an inhaled medication to help break down the sticky substance that is left behind by white blood cells in her lungs. These things have kept me quite healthy!! My mommy tells me that I = was definitely born in the right time. The only thing that has affected me was weight gain in the beginning and continued GI issues!. Once I was diagnosed and put on medications my weight gain was no longer an issue. Although, I continue to struggle with GI issues. So far we are managing it the best we can with medications. Science has greatly boomed in the last 15 years. Because of all the research, I have not suffered with all the lung infections that sooo many others have. This research and development has been made possible because of all the events and donations over the past decades. When I was born, my mommy was told the mean life expectancy was 30. And now, just 8 years LATER the life expectancy is 50 (can I tell you that my mommy can sleep more peacefully at night with this information)!!
Please help us raise money so that I can live the most fulfilling life possible!! Please join my parents, family, friends, AND me Ms. KittyBear this May as we walk to add tomorrows to everyone's life.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.