Hello,
My little KittyBear is growing so fast. She is now 7 years old and thriving well. She has been doing quite well with CF and that is all thanks to the research that has been done. She has quite the regimen of medications and therapies to do on a daily basis. Every day she gets a dose of albuterol, followed by saline through the nebulizer, and then chest physical therapy (it use to be pow pow, but now she wears a vest). This process is done twice a day. Gabby just started taking the new gene therapy medication (Trikafta). This medication helps to partially correct the CFTR protein which helps to Target the underlying cause. It has improved lung function, has decreased pulmonary exacerbation, and has decreased the sweat chloride. On a daily basis she gets her chest therapy twice a day, an enzyme before every meal and snack, a daily vitamin, and an inhaled medication to help break down the sticky substance that is left behind by white blood cells in her lungs. These things have kept my baby girl healthy!! Gabby was definitely born in the right time. The only thing that has affected her was her weight gain in the beginning and continued GI issues!. Once she was diagnosed and put on medications her weight gain was no longer an issue. She continues to struggle with her GI issues; however, we are managing it the best we can with medications. Science has greatly boomed in the last 15 years. Because of all the research, my daughter has not had to suffer like soo many others with CF. This research and development has been made possible because of all the events and donations over the past decades. When Gabby was born we were told the mean life expectancy was 30. And now it’s 50!! Please help us raise money so that Gabby can live the most fulfilling life possible!! Please join us AND Ms. KittyBear this May as we walk to add tomorrows to everyone's life.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.