Morgan Spencer

Ben's Great Strides Story

​Ben's story is one for the book! Ben was diagnosed with CF before he was even born. We knew he had CF while, he was growing inside my tummy !  Ben is the most determined, strong willed, silly almost 2 year old. Ben was able to start taking Orkambi when he turned 1 year old, it was due to the research and the CF Foundation he was able to have this amazing drug to help him live more of a normal life. The Spencer family has fought this daily battle of CF since day 1 and we will continue to fight this battle until CF means Cure Found. 

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support Ben!!

By supporting BIG Ben's Phlegm Busters fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.