Carol Rohde

My Great Strides Story

My grandson Travis was born with cystic fibrosis. There is presently no cure for cystic fibrosis. By participating in and serving as this year's Great Strides ambassador, he is working to put an end to this terrible disease for thousands of CF patients.

Organs such as the pancreas and lungs are impacted by cystic fibrosis. Individual differences exist in the symptoms, and since CF patients live longer than ever before, the illness can worsen and cause major health problems. Travis is not yet aware that he is unique. It is typical for him to take his medication with every meal and to receive treatment several times a day. His body exerts so much effort to remain normal. My daughter, Alison and her husband, Trevor, labor day in and day out to ensure that he has many more tomorrows.

The Cystic Fibrosis Foundation has made incredible strides, including supporting the creation of over a dozen CF medications; however, these therapies are not a cure and are not available to everyone. Trikafta is one of these new drugs that has completely changed Travis's health. The CFF's fundraising efforts made this incredible medication a reality for families just like theirs. The Cystic Fibrosis Foundation is THE reason Travis has had access to the incredible medications, physicians, and treatments he has already had in his little life. We are all startled to hear that there is NO government support for CF.

He does treatments and takes medications everyday. But there is still no cure.

We must keep going. For Travis.

Your support makes a difference.

You can donate here by clicking on Donate next my name. Thank you for supporting Travis.