Ben's Great Stride Story
Ben's story is one for the book! Ben was diagnosed with CF before he was even born. We knew he had CF while, he was growing inside my tummy ! Ben is the most determined, strong willed, silly almost 2 year old. Ben was able to start taking Orkambi when he turned 1 year old, it was due to the research and the CF Foundation he was able to have this amazing drug to help him live more of a normal life. The Spencer family has fought this daily battle of CF since day 1 and we will continue to fight this battle until CF means Cure Found.
This year Ben was chosen to be the Great Strides South Texas Ambassador, he will represent South Texas and the CF community proud.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support BEN !
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.