Thank you so much for coming to our team page for raising awareness for cystic fibrosis. Weston and Emersyn were born February 10, 2018. Weston was born with meconium ileus and required surgery at 27 hours old. Following this surgery he faced a series of set backs that resulted in 4 total surgeries, an ileostomy for many weeks, and a 53 day hospital stay. He has struggled to catch up to meet his milestones but is now thriving! Weston's diagnosis came at 11 days old, and Emersyn's at 22 days old; to say we were shocked is an understatement. Jason and I are dedicated to ensuring they get all of the treatment and care possible so they can live their best lives. The Cystic Fibrosis Foundation helps so many families like ours with resources whether it be socially, mentally, physically or financially. They also support research efforts that are working towards finding a cure.
There is currently no cure for cystic fibrosis. Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
With the money raised at events such as this it helps further research and allows families affected by this disease to have continued access to treatment, research and medical professionals. We are encouraged by all of the progress and advances in research for CF and hope that a cure can soon be found!
Any contribution is greatly appreciated; even if a monetary donation is not feasible at this time, we would love to see you come out to the walk and join us to raise awareness and understanding!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible. **Don't forget to ask your company about their matching program!**
Everyone deserves to breathe!
Jason, Bryna, Wes & Emmy
Some additonal information provided by the CF Foundaton:
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.