In 2017 we ( the Roe Family) welcome our son Ignacio who was diagnosed with Cystic Fibrosis thru the newborn screening that is required by the state of Kentucky.
Fast forward to 2019/2020 and we have been blessed by this amazing community! In 2019 Ignacio was part of a N-1 study that was conducted by the Cincinnati children's hospital and funded with the CF Foundation! We owe so much to this organization, because of their funding to help research Ignacio is now on Kalydeco and having great STRIDES because of it!
In the US approximately 30,000 people have this disease, Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs that eventually culminates into respiratory failure. This terminal disease has had a huge impact in our family , so we have pledge to bring awareness to Cystic Fibrosis in the hopes to find a cure.
The Cystic Fibrosis Foundation is the world’s leader in a search for a cure. Nearly every CF drug available today was made possible because of the Foundation’s support.
This year we are so excited to add Nachos sister love for Horse and raising awareness that we would Love for you to join our team at KEENLAND and take part in adding Tomorrows for everyone with cystic
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.