In 2017 we ( the Roe Family) welcome our son Ignacio who was diagnosed with Cystic Fibrosis thru the newborn screening that is required by the state of Kentucky.
Fast forward to 2019/2020 and we have been blessed by this amazing community! In 2019 Ignacio was part of a N-1 study that was conducted by the Cincinnati children's hospital and funded with the CF Foundation! We owe so much to this organization, because of their funding to help research Ignacio is now on Kalydeco and having great STRIDES because of it!
In the US approximately 30,000 people have this disease, Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs that eventually culminates into respiratory failure. This terminal disease has had a huge impact in our family , so we have pledge to bring awareness to Cystic Fibrosis in the hopes to find a cure.
The Cystic Fibrosis Foundation is the world’s leader in a search for a cure. Nearly every CF drug available today was made possible because of the Foundation’s support.
This year we are so excited to add Nachos sister love for Horse and raising awareness that we would Love for you to join our team at KEENLAND and take part in adding Tomorrows for everyone with cystic
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.