Harper's Hope

Harper is a fun loving, ball of sunshine, spreading happiness wherever she goes. She will be graduating Jr. K in early May and is eagerly waiting to start Kindergarten in August. She was tested at 2 weeks old for Cystic Fibrosis and diagnosed at 5 weeks old through lab work and a sweat test. It was also confirmed that Harper had Pancreatic Insufficiency (PI). PI is very common in CF. That meaning, her pancreas doesn’t release enough enzymes to digest fats, protein and most carbohydrates. So because of this she has been taking Creon, a medication that helps replace enzymes that her pancreas is lacking… since she was 5 weeks old. We went through a pretty rocky year in 2021 which led to Harper having a Gtube placed in her belly. Fast forward to today and she’s swallowing pills, multiple pills at a time and Gtube FREE! She not only amazes me but she inspires me, along with many others every single day for her courage, determination and resilience.

The HOPE we have for Harper is to live a long and healthy life and that is rooted in the work that the Cystic Fibrosis Foundation is doing. The CFF is the driving force behind the life saving research and medication such as the Creon she takes daily and the newest miracle drug Trikafta that has moved the needle of life expectancy from 5 to 50! Trikafta is drastically changing the lives of those who live with the disease. Unfortunately, only people with certain mutations of Cystic Fibrosis are qualified to take Trikafta due to research and studies. By donating to our team you are helping us get one step closer to allowing all people with Cystic Fibrosis a chance for a better quality of life and a longer life expectancy. Our ultimate goal is the day when CF stands for CURE FOUND.