I often wonder what goes through her head ... during treatment time. Or when someone comments about her being out of breath. Or when we stress over her having a head cold because it makes her cough all night long. I often wonder how she feels, as a tiny person, to live with a chronic disease that robs her of precious time each day.
I will never know how she feels.
What I do know is ...Her family loves her unconditionally and we pray she feels loved and supported at all times. We pray that we teach her to rely on God for strength when she feels scared and confused. That we teach her to embrace her strengths and the irreplaceable relationships of her siblings and friends. What We do know is that she is smart, beautiful, and kind. We pray that she always knows Cystic Fibrosis is a PART of her life but it DOES NOT DEFINE her life or what she's going to accomplish.
For CF awareness month, please stand with us as we HOPE, we PERSEVERE and we FIGHT for Kyla and all other individuals living with Cystic Fibrosis.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.