Cystic fibrosis (CF) is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. Currently, there is no cure, and many young lives are cut short by this tragic disease.
Alexandra was born in April 2013. She was diagnosed with Cystic Fibrosis from her newborn screening. She was 2 weeks old. Their parents and extended family have no history of CF, so the diagnosis was an unfortunate surprise. Alex is a very smart and strong girl, despite taking over 20 pills each day for digestion, multiple other medications, various breathing treatments, special vitamins, and physical therapy every single daily. Alex’s family has become heavily involved with the Cystic Fibrosis Foundation (CFF) to help support the search for a cure. Over the last eight years, with support from people like you, Team Alex has been able to raise MANY, life-changing dollars toward a cure for this disease! A few years ago, Team Alex broke SIX figures and hit the $100,000 mark. Let's keep the momentum going!
Drug research is a major challenge for rare diseases. It is not viable, without charitable support, for drug companies to invest in drug research for CF as these medications can only be marketed to a miniscule portion of the population. CFF helps bridge the gap by fundraising and raising awareness for this disease. CFF has funded nearly every clinical trial for CF in the last decade. Drug research led to a new and exciting breakthrough in 2012. In 2019 another game-changing medication was approved. This has opened the door for so many patients to live fuller, healthier lives! Many CF researchers believe that a cure is near.
In just a few short years when Alex reaches middle school, we want her to have real hope for a cure. We want her to see that the efforts of people like you have made a difference. With your help, we can give Alexandra and others with CF the quality of life and the future they deserve. Please support our mission for this beautiful young girl!
HOW YOU CAN HELP:
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.