Cystic fibrosis (CF) is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. Currently, there is no cure, and many young lives are cut short by this tragic disease.
Alexandra was born in April 2013. She was diagnosed with Cystic Fibrosis from her newborn screening. She was 2 weeks old. Their parents and extended family have no history of CF, so the diagnosis was an unfortunate surprise. Alex is a very smart and strong young girl, despite taking over 16 pills each day for digestion, multiple other medications, various breathing treatments, special vitamins, and physical therapy every single daily. Alex’s family has become heavily involved with the Cystic Fibrosis Foundation (CFF) to help support the search for a cure. Over the last eight years, with support from people like you, Team Alex has been able to raise MANY, life-changing dollars toward a cure for this disease! A few years ago, Team Alex broke SIX figures and hit the $100,000 mark. Let's keep the momentum going!
Drug research is a major challenge for rare diseases. It is not viable, without charitable support, for drug companies to invest in drug research for CF as these medications can only be marketed to a miniscule portion of the population. CFF helps bridge the gap by fundraising and raising awareness for this disease. CFF has funded nearly every clinical trial for CF in the last decade. Drug research led to a new and exciting breakthrough in 2012, and many CF researchers believe that a cure is near.
In a few years when Alex reaches middle school, we want her to have real hope for a cure. We want her to see that the efforts of people like you have made a difference. With your help, we can give Alexandra and others with CF the quality of life and the future they deserve. Please support our mission for this beautiful young girl!
HOW YOU CAN HELP:
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.