Cystic fibrosis (CF) is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. Currently, there is no cure, and many young lives are cut short by this tragic disease.
Alexandra was born in April 2013. She was diagnosed with Cystic Fibrosis from her newborn screening. She was 2 weeks old. Their parents and extended family have no history of CF, so the diagnosis was an unfortunate surprise. Alex is a very happy and smart little girl, despite taking over 16 pills each day for digestion, multiple other medications, three different breathing treatments, special vitamins, and physical therapy twice daily. Alex’s family has become heavily involved with the Cystic Fibrosis Foundation (CFF) to help support the search for a cure. Over the last seven years, with support from people like you, Team Alex has been able to raise MANY, life-changing dollars toward a cure for this disease! A few years ago, Team Alex broke SIX figures and hit the $100,000 mark. Let's keep the momentum going!
Drug research is a major challenge for rare diseases. It is not viable, without charitable support, for drug companies to invest in drug research for CF as these medications can only be marketed to a miniscule portion of the population. CFF helps bridge the gap by fundraising and raising awareness for this disease. CFF has funded nearly every clinical trial for CF in the last decade. Drug research led to a new and exciting breakthrough in 2012, and many CF researchers believe that a cure is near.
In a few years when Alex reaches middle school, we want her to have real hope for a cure. We want her to see that the efforts of people like you have made a difference. With your help, we can give Alexandra and others with CF the quality of life and the future they deserve. Please support our mission for this beautiful young girl!
HOW YOU CAN HELP:
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.