I often wonder what goes through her head ... during treatment time. Or when someone comments about her being out of breath. Or when we stress over her having a head cold because it makes her cough all night long. I often wonder how she feels, as a tiny person, to live with a chronic disease that robs her of precious time each day.
I will never know how she feels.
What I do know is ...Her family loves her unconditionally and we pray she feels loved and supported at all times. We pray that we teach her to rely on God for strength when she feels scared and confused. That we teach her to embrace her strengths and the irreplaceable relationships of her siblings and friends. What We do know is that she is smart, beautiful, and kind. We pray that she always knows Cystic Fibrosis is a PART of her life but it DOES NOT DEFINE her life or what she's going to accomplish.
For CF awareness month, please stand with us as we HOPE, we PERSEVERE and we FIGHT for Kyla and all other individuals living with Cystic Fibrosis.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.