By making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
There are now several medications approved by the FDA that treat the underlying cause of Cystic Fibrosis. Before now, medications have only been available to treat the symptoms caused by the disease. Over ninety percent of people with CF now have this type of treatment. Unfortunately, our children have very rare mutations causing their disease and fall into the category that do not have coverage yet.
There is still hope! The Cystic Fibrosis Foundation is not giving up until all patients have a cure. They are continuously giving money for research of new medications. It won’t be long until all patients have the coverage that they need to live long, healthy lives. When Anistyn was born almost seven years ago the average life expectancy was 37. It is now 53! We know this number will continue to climb with your help!
Anistyn and Easton continue to amaze us. They are living the lives that we dreamed about. This is because of the advancements in treatment and we know it can be even better.
We have the best family and friends want to thank you again for your love and support! It means so much!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.