Katie Miles

Harper Rayne is her name. She is 4 years, full of spunk and sass! Harper was tested at 2 weeks old for Cystic Fibrosis and diagnosed at 5 weeks old through lab work and a sweat test. It was also confirmed that Harper had Pancreatic Insufficiency (PI). PI is very common in CF. It means that Harper’s pancreas does not function well enough on its own to allow her to absorb the nutrients she needs with out pancreatic enzymes. So because of this she has been taking medication since 5 weeks old. Throughout our journey we have been very lucky when it comes to Harper’s health, with very few setbacks. 

Recently a huge breakthrough was made in the CF community. The FDA approved Trikafta, known as “The miracle drug” and it is drastically changing the day to day life for a person living with Cystic Fibrosis. Harper will be starting this medication end of June mid July and we can not wait! While being life changing/saving it is still not a cure and only specific mutations are eligible for this medication. Generous donations to the Cystic Fibrosis Foundation are what helped this historical day happen. If you’d like to join our fight in finding a cure, please consider donating, sharing or signing up to walk with us at the Great Strides walk on May 21st. 

THANK YOU SO MUCH! 

UNTIL IT’S DONE! <3

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?

Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!